When I was diagnosed with Dysautonomia I couldn't wrap my head around it. The doctor had to repeat it 3 times, spell it and write it on a piece of paper. Then he told me to go home and google it.
I am not going to lie. I had a lot of judgement about him after that visit. I did google it. I watched YouTube which made it seem like nearly everyone with Dysautonomia was a teenager. But still I enjoyed watching their videos about how they dealt with it. I didn't have a guidance counselor to help me out.
Then I found Facebook groups. Dysautonomia is super organized on Facebook. It's awesome. One of the Facebook groups is just for writers. One is for musicians. I belong to both because I am both. I was so involved in the beginning. Then I got distracted by new diagnoses. But now I am back. Kinda.
I have an affinity for words. That's why I write blog posts. Reading 500 pages in one day used to be normal for me. Dysautonomia has taken that from me. I am hoping temporarily. It now takes me a couple years to get through a 200 page book. I listen to audible but lately I have a low tolerance for that too. If I find an article that I find interesting I skim it for the parts that I REALLY want to read. If a facebook post is too long I can only read the beginning. Writing hurts my hands. I often misspell words. Spelling used to be easy. Nothing is easy anymore.
But I am still here and I still enjoy words. They are beautiful.
